On the occasion of the International Rare Disease Day 2026, the National Medical Center '20 de Noviembre' of ISSSTE became a meeting point for specialists from various medical fields, who gathered to discuss the clinical, diagnostic, and therapeutic advances in the care of these conditions.
Under the motto 'In the Era of New Therapies,' the academic event brought together representatives from the health sector, the legislative arena, academia, and civil society organizations, with a clear objective: to strengthen the comprehensive approach to rare diseases in Mexico.
Among the distinguished attendees was Mónica Herrera Villavicencio, Secretary of the Commission for Attention to Vulnerable Groups and Federal Deputy for District 7 of the State of Veracruz, who gave an exclusive statement to LaSalud.mx.
In her speech, the deputy emphasized the importance of the initiative to be presented on February 24 in the Chamber of Deputies, which will be deliberated in the Health Commission chaired by her colleague, Deputy Pedro Zenteno.
'Hello, I want to tell you that on February 24 we will be presenting our initiative on rare diseases,' she expressed with enthusiasm.
The deputy stressed the commitment of the Congress of the Union to continue legislating in favor of those who need it most, especially people with disabilities and patients with rare diseases.
'We are there to help, working together with other deputy friends,' she added.
'We are raising our voice on behalf of all patients with some rare disease,' she concluded.
Mónica Herrera also shared her personal experience, highlighting that as a legislator with a low-prevalence diagnosis, she has been working to make these issues visible within Congress.
'This initiative is very important because it represents the entire struggle and odyssey that families, caregivers, and people with some type of rare condition have gone through,' she added. 'There has been great progress in recent years in terms of inclusion and rare diseases in medicine as well,' she commented.
Finally, the deputy recognized and thanked the efforts of doctors who, through their work, help to make visible and accompany patients in their fight.
